Among the most infuriating barriers to mental healthcare reform is the indifference of policymakers. The mentally ill don’t form a significant constituency, in voting or in contributions. Thus, you know, nobody cares.
State Senator Cindy Friedman, a Massachusetts Democrat, has burst through this complacency. Working with some colleagues mentioned below, Senator Friedman has crafted an important new bill and shepherded it through the Senate. It is on its way to the state’s House of Representatives for enactment into law.
The ABC Act, as it is called, should be a model for every state in the nation. And it signals to reform advocates that they have a new champion. Kudos to Senator Friedman. And thanks to my fellow advocate Donna Erickson for the heads-up!
Here is a glimpse inside the soul of an activist. Leslie Carpenter of Iowa City, Iowa, is among the very best we have. She has connected, and deeply, with people at all levels of public service to implant her passionate agenda of mental healthcare reform.
She also immerses herself in the lives, the despair, the desperate pleas for reclamation, from ordinary people who see their loved ones in agony. She embraces their anguished stories and does what she can to aid and comfort them. Often, her efforts fall short, as most of such efforts must. And when fatigue and frustration overtake her, she confesses it, eloquently, as in this Facebook post. Read it, please, and absorb a hero’s account of how god damned hard it is for all of us.
Sometimes in the life of being a very public serious brain illness advocate, I have people reach out to me for suggestions for loved ones, resources, etc. I try to respond to all of them and at least make an effort to reach them, give them all of my contact information, and let them get back into contact with me. Not all do, but when they do, I try to listen with a caring heart and share information that might be helpful.
Recently, I was asked to meet with someone who has worked within the system who wanted to share information with me of several cases and system failures they felt I needed to know since I work at the local, state and federal level to improve mental health care.I just left that 2.5 hour meeting feeling filled up with the poison of knowledge of so many cases with adverse outcomes, due to not just gaps in the system, but active choices of key people in the system.I have known there were problems, gaps, and challenges. I now know some of the people who specifically have caused harm, and my soul is feeling overwhelmed with sadness and disappointment.I need to move forward with solving some of this mess, and I will. But for now, I am sitting in a random parking lot crying and processing and figuring out the best next steps.For now, let me say this:We need more people to go public with this humanitarian crisis of not treating people with serious brain illnesses and not paying for them to be housed in the best level of care where they can be the healthiest and most stable.We need to care. We need to act, no matter how terrifying it might be to bring this information forward.#WeCanDoSoMuchBetterThanThis
The documentary-in-progress inspired by my book No One Cares About Crazy People rolls along. Here is an updated promo reel created by the producer, Gail Freedman.
Gail Freedman, the gifted and tireless producer of the documentary arising from my book No One Cares About Crazy People, has just revised and expanded the promo reel for the docu-in-progress. The new, riveting interviews show that Gail has traveled the United States on limited resources, eliciting personal stories from a range of afflicted people and their loved ones. She has also homed in on the unthinkable tragedy of the Rippee family of Vacaville, CA, giving us raw access to the ravaged Mark Rippee. Brava, Gail!
A personal note: the film now opens with my late son Kevin belting out “One More Saturday Night,” accompanying himself on an acoustic guitar, at age 7. Kevin was en route to becoming one of the premier guitar artists in the nation when he took his life in 2005 on the eve of his 21st birthday. Schizoaffective disorder.
I gave this tape to Gail early in the process. But I had not then listened to it myself–couldn’t. This morning was the first time I had heard Kevin’s child-voice in about 30 years.
No, seriously–and props, and godspeed to her! Her piece in the October 19 Washington Post turns a rare spotlight on one of the many under-explored areas of corrupt and viperish traps for mentally disturbed children.
Like solitary confinement–into which Ms. Hilton was dumped for a while, even though the foul world of “parent-approved kidnapping” has no law-enforcement authority–these predatory outfits are barbaric relics of the notorious “Bedlam” asyum, founded nearly eight centuries ago. Justice and human decency cry out for their abolishment, yet they and similar atrocities remain in business.
Paris Hilton’s bold denunciation has helped me to understand her for the first time, and to welcome her into the lists of reform advocacy. We need many more like her: public figures (all right, dammit, celebrities) who speak out from raw, often psychically crippling personal experience, to help us end the long sordid reign of abuse toward the mentally ill.
From the Washington Post:
Opinion: America’s ‘troubled teen industry’ needs reform so kids can avoid the abuse I endured
When I was 16 years old, I was awakened one night by two men with handcuffs. They asked if I wanted to go “the easy way or the hard way” before carrying me from my home as I screamed for help. I had no idea why or where I was being taken against my will. I soon learned I was being sent to hell.
I am typing these words in a near-incoherent state. I am consumed with boiling anger that makes me want to scream; black despair; bottomless pity for Rebecca Distel Reinig, the mother of Joseph; for Joseph’s father, and for Joseph, rest his soul. I feel such contempt for the pigsty that is our mental healthcare system and for the hospital and the healthcare factotums who carried out this coldblooded deceitful near-execution. (A sack lunch they gave him before dumping him in the rain. A SACK LUNCH).
I feel trepidation on behalf of certain friends who will read this and feel stricken because they have also felt the sting of American barbarism—institutional and private—as regards mental illness. The Rippee family. The West family. Find them in my blog archives if you don’t know who I am talking about.
Yet I derive hope from the handful of heroes in this country who do not let their own exhaustion and despair halt their crusade: the author and advocate Dede Moon Ranahan, who originally posted Rebecca Reinig’s nightmarish account of her son’s fate. Others.
I know that many, if not most of you, being human, come upon my mental-illness blog posts and read past them. Not this one. Please. Don’t skip this one. Read it, Every word. And learn something about the hellscape that awaits just on the other side of the membrane.
From Rebecca Distel Reinig:
“It’s with a heavy heart and a sadness that I did not know existed in a human soul that I would like to share with you the passing of my son Joseph. He was found Wednesday in some bushes in Oceanside, CA. Alone in the rain. Still wearing the hospital gown that he was had on when he was dropped off by staff from the behavior health hospital on Monday afternoon. His death is a tragedy and could have heen prevented if the doctors and social worker had truly listened to me when I begged them to not release him to the streets. I told them he was gonna die. Keep reading…I will explain the trajedy of his death. His cause of death is under investigation by the San Diego Coronor. An autopsy will be performed within the next few days.He just turned 30.
For those of you who do not know my son’s story, it’s not that much different than thousands of families out there. Joseph lived in transient camps in San Diego County with severe mental illness. We wanted him to live with us. In fact we took early retirements to move him and us away from San Diego 350 miles north to a small town in the foot of the Eastern Sierra mountain range, where I was raised, and where as kids our we would take our children. We thought taking him to the mountains where he loved hiking and fishing, that giving him a stress free life in the mountains and loving him up would “cure” him. His delusions had him convinced that living up here with us was endangering our lives. He was convinced that if he did not leave ” they” would bomb our house, kill us and put him in a cold dark room ( not unlike the padded cell in jail where he would spend days at a time in, naked in a straight jacket).
He lasted living with us for only several months, and thinking he was saving our lives, he went back to the streets of San Diego CA. That was 3 years ago. Since that time his life had been a revolving door of mental hospitals, medical hospitals and jail. He has been hospitalized in behavior health hospitals 9 times this last year. Sometimes against his will, often times he would admit himself. Often times I would drive the 5 hour trip to pick him up, get a motel and would try to convince him to come home. He always refused. Stating our house would be bombed if he did.I’m also angry…that’s not even a strong enough word. Joe admitted himself last week to Aurora Behavior Health Hospital. That was his go to place. He liked the staff and doctors and they seemed to care about him. It was there 2 months ago that the psychiatrist determined he was unable to care for himself and referred him to the County conservitor office so his dad and I could gain control of his medical needs and help him obtain the long term help he needed. The conservitor investigator denied the claim because he did not meet the criteria of gravely disabled. In California the bar is set very high to meet the criteria of gravely disabled. I have yet to know of anyone being successful with that endeavor in california. Accept Britney Spears. Her conservitorship is a slap in the face to those of us whose loved ones truly need help.
Anyway..Last week Joey admitted himself because he was feeling suicidal and was psychotic. He would always call to tell me keep was trying to get help. He wanted help so badly. Last Friday the social worker called and assured me that he would not he released to the streets, she was trying to get him reestabluxhed with a care management team and get him long term housing. I stressed that he could not be released to the streets. She assured me he would not. Monday morning she called and said he was heing released and Gould I pick him up? I asked what happened to the management team and housing. She explained no one would accept him because over the weekend he had been violent with staff. I instantly asked her why would she ask me to pick him up if he had been violent? I begged her to have him out on s 5150 hold to buy me some time to figure it what to do. She was heading to a meeting about him and would talk to the doctors. I was clear when I stated to her that under no circumstances should he be released to the streets. I said he is gonna die of we cannot get him the help he deserves . She assured me they would not and would get back to me. She did not. I called the hospital to talk with Joey monday night, he was not there. Still no call from the social worker. Tuesday morning I called her. she explained that her ” team” had given him a ride to Ocesnside and dropped him off at a CVS pharmacy with his prescriptions and a sack lunch. I was in shock, hung up and waited for his call. He always called. His body was reported to the sheriff’s office Tuesday night but because of bad weather they could not locate him with drones. The homeless lady who reported him took them to his body Wed. morning. He was still wearing his hospital gown and still had a baggy of white powder clutched in his hand. He was steps from the homeless camp. the coronor explained that it appeared he got some bad dope laced with fentanyl. Although suicide and foul play have not been ruled out. What kind of crazy fuck places meth with fentanyl? Its deadly and kills almost instantly.I’m so angry and devastated I want the system to pay for failing him. I want accountability. I m so angry its consumed me. I dont want to he consumed. Yesterday in.my grief i called a wrongful death attorney and babbled like an idiot. I told them i needed an attorney with balls enough to take on the “system” and make the “system” accountable for my son’s death and the needless deaths of all the other josephs out there. I want justice, awareness , accountability and the laws changed that binds the hands of families trying toget help to save their loved ones lives . iI dont want his death to have been in vain. The attorney politely said they will get back to me. I doubt it.Meanwhile we sit here trying to figure out where we will come up with the money to bring our son home and have s memorial for him. Death is such a money making business and for a fee if $250 we can buy 30 minutes if time to see our sons dead body and tell him goodbye . …that is if he is in viewable condition. if not, for an additional 800 they will make him viewable.”
“Rikers houses more than 4,800 detainees on a given day, a majority of whom are awaiting trial and have not been convicted of a crime. Most do not commit violent acts, and a significant number struggle with mental illness.”
DeSantis speaking at a press conference in southwest Florida,
“I have (three) young kids. My wife and I are not going to do the mask with the kids. We never have, we won’t. I want to see my kids smiling. I want them having fun.”
I don’t know. I mean, I really don’t know. What are the outer limits of rightwing arrogance and delusion? What are the limits of human delusion? Are there any limits?
Does “depraved indifference to human life” have any meaning anymore? Does anything have any meaning anymore?
This . . . man, this father, this college-educated governor of a major state, this grinning buffoon who was elected to protect the well-being of 21.6 million souls–the population of Florida, third-largest in the nation—is instead toying with their health and their lives–AND THE HEALTH AND LIVES OF HIS OWN WIFE AND CHILDREN!—and for what?! Stab in the dark here: his personal political ambition.
Florida is averaging 17,000 new cases of Covid-19 per day as the deadly Delta variant surges. Seventeen. Thousand. A day.
And Ron DeSantis wants to see his kids smiling and having fun. So, no masks. And he’s not going to allow schools to mandate mask-wearing in Florida, either.
Ron DeSantis must have a major smile jones.
Over the past wretched year, the past wretched five years, I have often snapped at friends who wailingly ask, “What have we come to?” “How did we get to this point?”
They ask it in bewilderment over Covid denialism. And the Trump administration. And the post-Trump-administration depravities such as the January 6 Capitol storming. And the subsequent mockery directed at brutalized, traumatized police heroes as “actors” in “political theater.”
And in bewilderment over the armchair rightwingers such as the radio blowhard Charlie Kirk who denounce the tormented Simone Biles as a “selfish sociopath[!]” for withdrawing from the Olympics. (On Tuesday she decided to compete in the balance beam final and won a Bronze medal.) And the others who sneer at “the liberals” who supposedly “shed a tear” over her mental-health crisis.
I tell these worried friends: Don’t just ask, in tones that imply the question is unanswerable. There are answers! Find them! Read! Research! Go online! Google “collective psychosis”! Google “tribalism”!
And feeling ever-so-slightly superior in my own stern rationalism.
Until I could no longer pretend to hear the small voice inside me that kept repeating, more loudly each time: “ . . . Maybe.” With the loudly unspoken corollary: “ . . . And maybe not.”
I’ve spent the past several weeks—well, months—trying to follow my own advice. I’ve pored through books, scholarly articles, and serious journalism to help myself figure out why the political fissures and tensions, always present in American life, have burst into this continental oil-refinery fire. And why those who stand to suffer the most from its many scorching flames are responding by throwing more petroleum onto it. ( Vide: Governor Ron DeSantis of Florida throwing up barriers to commonsense Covid protection so that he can see his children smile and have fun.)
Have you ever heard of a more deranged and irresponsible reaction to an existential threat?
As the father of two loved and loving sons who both contracted schizophrenia, one of them taking his life, I am naturally attuned to the fragility of the human mind. (And infuriated at the fatuous Governor for taking his children’s health for granted.) I’m no psychiatric scholar, no authority of any kind. Yet I have learned enough to understand that none of us is truly “normal.” There really is no “normal.” We all advance through life across a thin membrane, a membrane that could rip and thus plunge any of us into a chronic, incurable brain disease such as schizophrenia. Or, far more commonly, into treatable yet debilitating conditions such as depression, rage, alcoholism, refuge in alienated “tribes,” susceptibility to the lure of seductively tyrannical cults.
I’ve winnowed my explorations to the latter two: the tribe and the cult.
An affinity for either of these collective bodies strongly suggests that even though the adherent may not be seriously mentally ill, she may well be wounded enough by life’s cruelties (including abuse, poverty, addiction, a bad education) that her self-identity is ravaged and she has surrendered the capacity to think and act in her own best interests. She accepts the group’s ethos as her own.
To vastly oversimplify: the tribe is generally a physical community of people nurtured by handed-down beliefs. It has the power to absorb an individual’s identity into its shared values, myths, prejudices, and class/political assumptions. The cult generally does not spring from an organic community. It magnetizes rather than nurtures. Its magnetism has been radically enhanced by the electronic grid. The psychic power of the cult over vulnerable individuals is if anything far greater and more insidious than that of the tribe.
I accept the reality of tribal behavior—like most of us, I have witnessed it and lived it to some degree—yet I’ve found myself leaning to the cult as the powerful source of our present chaos.
Cults attract people who did not necessarily come of age under a cultish spell. Cults attract desperate loners; those whose self-identities have been desiccated; people who virtually doubt their own existence and crave identification with a group that promises them a means of belonging.
I think of QAnon. I think of Chris Hedges’s masterful and ironically titled 2014 book, “War Is a Force that gives us meaning.” I think of the odious threadbare trope, “Drink the Kool-Aid.”
Cults, I came to believe in my hard-earned layman’s understanding, are a form of collective psychosis. Yes, that was it! Shared psychosis.
And then I contacted Dr. Joseph Pierre for confirmation.
Dr. Pierre is professor in the Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine at UCLA. He is copiously published and widely interviewed in the areas of forensic psychiatry, neuroscience, delusion-like belief, cannabis-induced psychosis, and in many topics related to schizophrenia.
Dr. Pierre has studied shared psychosis, yet he does not think it is responsible for our current havoc. In a recent email, he wrote,
“I am firm in saying that movements like QAnon, however crazy they might sound, are not examples of shared or collective psychosis proper.”
He clarified his view in a June edition of the online journal “Medium.” Without intending to speak for him, I infer a proposition even more troubling than psychosis: the rapid erosion of shared reality. The twilight of “the truth.”
Referring to the rash of harebrained theories that accompanied Covid’s rise, Dr. Pierre writes,
“Conspiracy theories reject authoritative accounts of reality in favor of some plot involving a group of people with malevolent intentions that are deliberately kept secret from the public. The psychological underpinnings of belief in conspiracy theories include a long list of associated cognitive quirks including lack of analytic thinking and heightened ‘bullshit receptivity;’ need for control, certainty, and closure; and various attributional biases such as the tendency to ascribe random events to ultimate ‘teleologic’ causes.”
And good luck with that. William Butler Yeats wrote the death warrant for such optimism eighty years ago in a line from “Four Quartets”: “Go, go, go, said the bird. Humankind cannot bear very much reality.”
Not that humankind ever could. In America alone, we have lived with the denial that slavery caused the Civil War since the ink dried on Lee’s surrender at Appomattox. Thus seven hundred fifty thousand people died over “states’ rights.” (Uh, states’ rights to do what?) The curse of racism stoutly denied is viler than ever today, embedding itself blatantly in our school systems and poisoning free and fair elections.
In April 1966, the cover of Time Magazine thunderously asked, “Is God Dead?”—having answered the question the previous October, in the affirmative. What millions of believers took as the ultimate Truth was pulverized before their eyes.
The academic “deconstruction” crusades of the 1980s gave even intellectuals the vocabulary for denying that truth, and meaningfulness in words, existed. (Besides handing a victory to the anti-intellectual right, the “tenured radicals” found themselves obliged to use words in refuting the meaning of words. An irony lies buried in there somewhere.)
And at about the same time, members of the Reagan administration, including Ronnie himself, were launching their historically effective renunciation of science.
Don’t even get me started on what this meant for poor Al Gore’s “An Inconvenient Truth.”
Or for all of us. For the “planet” we “live on.”
Dr. Pierre again:
“Conspiracy theories often arise during times of societal upheaval and can serve a blaming or scapegoating role intended to ‘self-medicate’ fears arising from chaos and uncertainty. Belief in conspiracy theories can also be understood within an overarching ‘socio-epistemic’ framework whereby mistrust in authoritative sources of information leaves us vulnerable to biased misinformation processing when searching for alternative explanations.”
So perhaps Dr. Pierre, and others, have it right: why should we reach for elusive concepts such as “shared psychosis” when the steady, centuries-long assaults on truth and meaning have softened up our frantic civilization for belief, or disbelief, in anything?
Run along and play, DeSantis children, in the open, sunlit, infected Florida air. Have fun. And don’t forget to not wear your masks!
. . . Yet the Texas deputy attorney general’s ignorance about mental illness and his slurring of Simone Biles tells us all we need to know about how much America still needs to learn, and care, about “crazy people.” Especially including powerful people in our criminal-justice system. Which is one hell of a lot of learning and caring. Meantime, more shame on you, college-educated and privileged and complacent Aaron Reitz.
Teresa Pasquini’s magificent, tender, searing essay below speaks for so many of us. I’ve seldom read a more encompassing and truth-telling message from anyone in our sub-nation. I applaud the subtle and not-so-subtle political and cultural indictments in it as well. Godspeed, eloquent amiga!
My thoughts this 4th of July with a variety of pictures of my beloved son over the years showing his love of life and freedom. “Lets Free Danny with a system of Housing That Heals”
The 4th of July is a good day to talk about freedom. It is the day we Americans cherish and celebrate freedom. It should also be a day to reflect on those who are not free in America. I have a special memory that I will always hold of traveling to Washington, DC on the 4th of July to fight for the freedom of #FamiliesLikeMine. I talk about that trip and the history of that work in this post, https://www.facebook.com/teresa.pasquini.3/posts/10213321797638040. It is a good reflection to hold in my heart as I think about the intentions of today’s freedom fighters.
Today, there is a national focus on the freedom of one person, Britney Spears. The “Free Britney” campaign has created a national myth-making media machine that excludes some of the most vulnerable members of our society. My son is one of those who have been excluded. As the mother of a beloved son who has been on a “conservatorship” in California for approximately 20 years, I have been waiting to weigh in on the Britney Spears conservatorship controversy until I could analyze the information objectively. I have been too triggered and traumatized by the sideline commentary of people who don’t know what the hell they are talking about and their armchair analysis is ill-informed and dangerous. It needs to be countered by a mom who knows the truth and can defend conservatorships as a freedom-giving and life-saving tool for many families and their loved ones.
Yesterday, I took the time to read multiple articles, talk to friends who act as their family members’ conservator, and reflect on the past 20 years that my son and our family has experienced the “conservatorship continuum” in California. First, I read the New Yorker Magazine article, https://www.newyorker.com/…/britney-spears…, which is actually one of the better reported. It clearly demonstrates a disturbing picture of a young Britney who was used and abused by many predators and by a system intended to protect her. I won’t do a sideline judgment of her family’s intentions because I didn’t walk in their shoes. But I have walked in similar shoes and can comment on my own experience.
The “Free Britney” movement has nothing to do with my 20-year mission as a mother to “Free Danny.” You cannot and must not conflate and equate the two-track conservatorship laws in California. You cannot mix up the medical system, behavioral health system, guardianship, legal, and justice systems to create reform for some while others suffer needlessly. I have watched advocates and legislators do this for years. I have watched Disability Rights of California do this for years. This has made necessary reform impossible for people who are disabled by their “serious mental illness.” Now is the time for getting real reform for all. And all must mean all.
This past year, the research of Dr. Alex Barnard shined a light on how the California Conservatorship continuum lacks authority and accountability. His work has sparked conversation and understanding about the grave inequity of deciding grave disability in California. His work has also demonstrated that too often families like mine must put our loved ones and communities in danger in order to get them help before they harm themselves or others. He offers solutions in his paper, https://drive.google.com/…/1H-hKxnd…/view that has been widely shared and will influence necessary change.
Dr. Barnard has also weighed in on the Brittney Spears movement yesterday in this Sacramento Bee OpEd, “Free Britney, but CA must also reform conservatorship laws …” I agree with most of his points but don’t believe that the solutions for freeing Britney, Danny, my brother(also previously on an LPS Conservatorship) and possibly my 90-year-old mom are as straight forward as he suggests.
Those of us who may face possible capacity issues with our elderly parents don’t need extra hoops to jump through if and when we try to protect their health and safety. We must not create laws based on the worst actors in our society who take advantage of the most vulnerable. Most people do the right thing within the current Probate laws. So, I don’t know that making Probate Conservatorships as hard to access and maintain as an LPS Conservatorship is the answer. More accountability for both is definitely warranted.
We need a system of solutions that is flexible, funded, and full. We now have a system of care that is not full or complete for those people who ARE gravely disabled and can’t get treatment before tragedy. The lack of capacity standards for the SMI population is not adequately being considered in reform conversations because we treat some disabling brain illnesses as a “mental/behavioral” issue rather than a medical illness. We must no longer cherry-pick which brain illness deserves a right to treatment and dignified housing or who is left to die on the streets with their rights on.
My Danny has been on an LPS Conservatorship for 20 years. While it did save his life and his civil rights were overprotected in many ways, there was nothing civil or right about the care, treatment, and support he received. The current laws did not protect his right to health, safety, and freedom in the appropriate “least restricted environment.”
While on conservatorship he has been forcibly locked away in faraway institutions, placed in solitary confinement, shunned, punished, and suffered in too many ways. And, while people talk about using conservatorship as a last resort, they need to know that families like mine DID use it as a last resort while being forced to make our loved ones gravely disabled and homeless. It is a cruel and usual process protected by too many and it lacks the clarity of the broken mental health system’s reality.
As the author of the Facebook blog, “Broken”, recently said, “Anyone can present as clear for the few minutes she [Britney] was speaking to the court. Without a professional who has examined her, we can’t really know how stable she really is. And just because she can make a speech to plead for her “freedom” doesn’t mean she can manage her finances. This decision is bigger than any of us can know. We only see what the media tells us.” There is that measure of sanity at the moment that looks only at imminent risk rather than the historical course of the illness. Capacity must be measured using a big picture, not a snapshot.
Appearances are misleading. 18 years ago, my Danny appeared well, both psychiatrically and physically, was taking his meds, had a room in a board and care and so his conservatorship was dismissed against our family wishes. That very night he stopped his meds. About a week later, he was on the BART tracks threatening to jump. He was 5150d (one of the 40 5150s he has endured) again and put back on an LPS. He has remained conserved for the past 18 years.
The conservatorship is what has enabled Danny to be free and stay free. He is adequately protected when the conservatorship renewals take place. He has psychiatrists who work with him to discuss his current state. He has a mom and dad who he relies on for advice. He has a public conservator who he trusts. He is represented by a public defender who is knowledgeable in conservatorship law. He has the capacity now to know that he needs support and help. However, he doesn’t understand why there is still no system of Housing That Heals to provide the medically necessary continuity of care to protect his freedom and not risk his dignity again should he go off of his conservatorship.
We talked about it just last week. He called and said, “Mom, if I go off conservatorship will you and dad help me?” I said, “Of course we will always “help” you, but we can no longer house you and be your sole caregivers. We have tried to do that off and on for over 20 years while ON an LPS Conservatorship and it didn’t work for any of us.” He said, “I understand mom. I will stay on it.” He might change his mind between now and when that decision is made by his doctors and the courts later this year. I will support him to learn about his options and I will fight for his right to live in as much freedom as is possible. I am a freedom fighter, too.
“Free Britney?” Probably. Britney has a house, food, and estate worth 60 million bucks to prevent her from becoming gravely disabled again. She deserves her freedom but should have a clear shared decision-making plan moving forward that will protect her health and wealth. I want that for her and for Danny. They both have movements fighting for their rights. Danny’s is different. It is a Moms On a Mission movement for a right to live in Housing That Heals. This movement is growing.
Housing and healing have been my mission for years. It is a mission that is ignored by many progressive Californians. The progressive movement elevates the right to shelter and the right to housing above the right to treatment. They protect one’s right to refuse treatment even if you lack the capacity to know you need it. A recent article by Heather Knight drives the issues home for the liberal /progressive California, San Francisco’s mental health care system fails two men: one killed, the other his allegedkiller.https://www.sfchronicle.com/…/San-Francisco-s-mental….
San Francisco Supervisor Mandelman is quoted and is right. There is nothing progressive, civil, or right to see here. “It’s the most dystopian version of progressive politics,” Mandelman said. “We’re all about civil liberties, but we don’t make the investments in basic services for sick people. We have this entirely negative version of liberty, about being free from things. But your freedom to live a decent life with dignity? We apparently don’t care about that at all.”
What would be progressive is if we would stop treating SMI as a “behavioral problem” instead of a brain illness. I don’t see that movement going on in California. Just more of the same. A lot of talk about peer support, which is great for many, but not all. Where is the talk about medical support in treatment facilities with compassionate providers who are given a continuum of services to support their patients upon release?. That continuum must include conservatorships as a prevention and intervention program for people like Danny who need more time to heal than his brain allowed him to understand in 24-72 hours. He understands now but it should not have taken 20 years of forced suffering to “Free Danny.”
As many know, Danny continues to improve while living in the community and he remains on an LPS Conservatorship. As it has for the past 20 years, it will be up for renewal again later this year. We as a family will consider all options in a shared decision-making process with Danny, his doctors, and his conservator. We continue to be grateful to Contra Costa Health Services and the Contra Costa Public Guardian’s office for partnering with our family over the years to help Danny live his best life. We hope that partnership will continue whatever happens next on Danny’s recovery journey.
I hope that the media, disability rights organizations, public defenders, legislators, social justice reformers, housing rights, and other mental health advocates will not forget to fight for Danny to live his life in health, safety, and freedom. And, I hope that they will join the Housing That Heals movement that seeks a system of care that will never risk anyone’s dignity by letting them be homeless, failed, and jailed. And, that they will protect the life, liberty, and the pursuit of happiness of all. And, all means all.
Happy 4th of July 2021. Let freedom ring today and every day in the USA. P.S. Thank you Kathy Day for your help with thinking this difficult subject through and for your great editing support!